Adult Congenital Heart Disease Page
Welcome to the CardioNerds Adult Congenital Heart Disease Series Page!
With landmark advances in the care of children with congenital heart disease, survival has improved, and more are living into adulthood. There are now more adults living with congenital heart disease than children. This is no longer a pediatric specialty alone. This growing population requires a specialized and personalized approach from multidisciplinary teams. While not every CardioNerd will specialized in ACHD, we will all have the opportunity to touch the lives of adults living with CHD, recognize their unique needs, and refer them to the appropriate centers if and when needed.
The CardioNerds Adult Congenital Heart Disease (ACHD) series provides a comprehensive curriculum to dive deep into the labyrinthine world of congenital heart disease with the aim of empowering every CardioNerd to help improve the lives of people living with congenital heart disease.
This series is multi-institutional collaborative project made possible by contributions of stellar fellow leads and expert faculty from several programs, led by series co-chairs, Dr. Josh Saef, Dr. Agnes Koczo, and Dr. Dan Clark.
CardioNerds (Amit Goyal and Daniel Ambinder), ACHD series co-chair Dr. Agnes Koczo (UPMC), and ACHD FIT lead Dr. Katia Bravo (UCLA) join ACHD expert Dr. Carole Warnes (Professor of Medicine and founder of the Adult Congenital Heart Disease Clinic at Mayo Clinic), to discuss adult congenial heart disease and pregnancy. They cover preconception counseling in women with congenital heart disease, appropriate risk stratification to estimate maternal and neonatal morbidity using existing tools and an individualized care approach and preparation for a multidisciplinary delivery plan. Audio editing by CardioNerds Academy Intern, Dr. Leticia Helms.
Meet Our Collaborators!
Founded in 1998, the Adult Congenital Heart Association is an organization begun by and dedicated to supporting individuals and families living with congenital heart disease and advancing the care and treatment available to our community. Our mission is to empower the congenital heart disease community by advancing access to resources and specialized care that improve patient-centered outcomes. Visit their website (https://www.achaheart.org/) for information on their patient advocacy efforts, educational material, and membership for patients and providers
The CHiP network is a non-profit organization aiming to connect congenital heart professionals around the world. Visit their website (thechipnetwork.org) and become a member to access free high-quality educational material, upcoming news and events, and the fantastic monthly Journal Watch, keeping you up to date with congenital scientific releases. Visit their website (https://thechipnetwork.org/) for more information.
Heart University aims to be “the go-to online resource” for e-learning in CHD and paediatric-acquired heart disease. It is a carefully curated open access library of educational material for all providers of care to children and adults with CHD or children with acquired heart disease, whether a trainee or a practicing provider. The site provides free content to a global audience in two broad domains: (1) A comprehensive curriculum of training modules and associated testing for trainees. (2) A curated library of conference and grand rounds recordings for continuing medical education. Learn more at www.heartuniversity.org/.
Adult Congenital Heart Disease Series Co-Chairs!
Dr. Agnes Koczo is a third year cardiology fellow at the University of Pittsburgh Medical Center. She is interested in cardio-obstetrics and adult congenital heart disease. She plans to pursue a T32 postdoctoral research fellowship studying immune dysregulation in patients with cardiac complications in pregnancy.
Dan Clark @DanClarkMD is a cardiologist with advanced imaging training who is currently in ACHD fellowship at Vanderbilt. He attended Northwestern University for his undergraduate education, then completed the combined MD/MPH at the University of Texas Health Science Center in San Antonio (UTHSCSA). He was a Med-Peds resident at Vanderbilt University and then stayed on to complete his adult cardiology training, where he served as chief fellow during his final year. During ACHD fellowship, he has a secondary faculty appointment as a Clinical Instructor in the Department of Medicine to read and teach Cardiac MRI. He is also currently finishing his 2nd year on a NIH T32 grant working on imaging-based research spanning topics from congenital heart disease, sports cardiology, and cardiovascular sequelae assessed by CMR among patients recovering from COVID-19. He is the husband to a wonderful Pediatrician who works in public health, dad to two playful kids, and an outdoors enthusiast. When not in the hospital, you can find him kayaking, hiking, or running with his dog.
Meet Our Guests!
Carole A. Warnes, M.D., is a cardiologist in the Division of Structural Heart Disease, Department of Cardiovascular Medicine with a joint appointment in the Division of Pediatric Cardiology at Mayo Clinic. Dr. Warnes joined the staff of Mayo Clinic in 1987 and founded the Adult Congenital Heart Disease Clinic, which she directed for 27 years. She holds the academic rank of professor of medicine. She is recognized with the distinction of the Penske Foundation Professorship in Clinical Medicine in Honor of Ian D. Hay, M.D., Ph.D., and J. Eileen Hay, M.B., Ch.B.
Dr. Warnes completed her M.B., B.S. at Newcastle Upon Tyne Medical School in the United Kingdom and did her general medicine training in Newcastle. She was registrar in cardiology at both the London Chest Hospital and the National Heart Hospital in London. Dr. Warnes was visiting staff associate in cardiology at the National Institutes of Health and a British Heart Foundation research fellow at the National Heart Hospital. She received her postgraduate M.D. degree with commendation at Newcastle Upon Tyne Medical School. In 2005 she was made a fellow of the Royal College of Physicians (FRCP).
As a cardiologist, Dr. Warnes focuses on adult congenital heart disease, and she oversees the treatment of many patients with difficult cases, including those related to heart disease and pregnancy. She speaks internationally and nationally on these topics and has published three books and more than 200 papers in prominent peer-reviewed journals. She has served as an editorial board member for American Journal of Cardiology, Circulation and Heart. In 2008 she chaired the American College of Cardiology/American Heart Association (ACC/AHA) Guidelines for the Management of Adults with Congenital Heart Disease. She has held multiple leadership roles in addition to serving on many committees of the ACC and served on their Board of Trustees for seven years. In 2016 she received the Distinguished Fellowship Award from ACC.
Dr. Warnes is the recipient of the Heart Heroes Leadership Award from the Adult Congenital Heart Association and received the Henry S. Plummer Distinguished Physician Award from Mayo Clinic. She has been honored consistently as Outstanding Teacher of the Year in the Cardiovascular Division at Mayo Clinic, where she was also recognized with the Distinguished Educator Award in 2010 and the Lifetime Achievement for Outstanding Contributions to Medical Education in 2014. In 2015 she received the Laennec Master Clinician Award from the AHA.
Dr. Warnes provides mentorship to numerous fellows and for 10 years served as dean of Mayo Clinic School of Continuing Medical Education. She holds teaching/examining privileges in Clinical and Translational Science at Mayo Clinic Graduate School of Biomedical Sciences.
Dr. Katia Bravo-Jaimes (@Bravo__MD) is an Adult Congenital Heart Disease Fellow at the University of California, Los Angeles. She is interested in reducing disparities in congenital heart disease care at local, national and global levels. She plans to continue her academic career combining clinical care, education and collaborative research to help patients with congenital heart disease reach their full potential.